Unstoppable: A Champion’s Journey to Finding Purpose with Multiple Sclerosis with GB Athlete Lina Nielsen

Unstoppable: A Champion’s Journey to Finding Purpose with Multiple Sclerosis with GB Athlete Lina Nielsen

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[00:00:00] Hi, and welcome to the Goode Health Podcast. I’m your host, Nicole Goode, a registered nutritional therapy practitioner and functional medicine practitioner. Join me as we explore thyroid, brain and fatigue conditions with positivity. From Hashimotos to multiple sclerosis, chronic fatigue to adrenal dysfunction.

I’ve got you covered with expert advice and tips to help you take action now and inspiring real patient stories from successful individuals who refuse to let their health hold them back. Start your journey to good health today. And don’t forget to come and join the conversation on Instagram at Good Underscore Health.

That’s G O O D E or visit my website @nicolegoodhealth.com to find out more today, we welcome Lina Nielsen to the Goode Health Podcast. Lina is a British sprinter and hurdler, having won the 400 meter hurdles at the 2021 European Athletics Team Championships. Lina’s now also a yoga instructor and is one of the instructors on the FIT App.

Lina was diagnosed with MS at the age of 17, [00:01:00] but kept her diagnosis private for nine years while competing in top level sports. MS is a disease of the brain and spinal cord and the immune system attacks self impacting the my sheath that is the protective cover over the nerve fibers. This damage is called demyelination.

It causes communication problems with messages traveling down the nerves from the brain to the rest of the body, and symptoms and progression can vary dramatically from person to person. Depending on where the nerves are damaged within the body, patients can suffer times of flareups or they can suffer times of relapse.

Symptoms can exacerbate during a flare up or new symptoms can appear. Last year in August, 2022, Lina had a relapse two days before the World Athletics Championship heats. This prompted her to go public with her story. Let’s jump straight into the conversation with Lina. Lina, welcome so much to the Goode Health Podcast today.

I’m so pleased that you’re joining us. No, honestly. Yeah. It’s really great to have you here. I think this is gonna be really, really useful for everybody that’s listening. [00:02:00] I would like to start with your career because you are someone whois doing a career that probably a lot of people with MS think you can’t do.

So at what age did you realise that you were destined for a career as a professional athlete? And was that always kind of in the plan? You know, I was I, I think I was what they call a late bloomer. I never kind of, you know, hear your stories of professional athletes and they started, you know, at age eight, age 10 12, and I really only started when I was about 16, 17.

1. And it was really only because of the 20th Olympics. They came to London and I was fortunate enough to live in one of the Olympic boroughs. So we watched, you know, the whole of London change and, you know, we, we grew up with the Olympic Park. So it was an incredible opportunity to have literally in my backyard and I just, I just loved running.

I just loved moving and I just wanted to see how far I could run. Back then I wanted to do distance events. And yeah, I just challenged myself along with my sister, my twin sister, and [00:03:00] my friends at school. We were fortunate enough to go to a very sporty school, so it was just something that I did for fun.

It was never in the plans for it to be a professional career. That kind of just fell into place, and I think that’s the best way that it could have happened because I wasn’t actively seeking it. It just, Sort of happened naturally. And it was only when I was 19 did I have my first kind of GB best and international competitions and it just snowballed from there.

That’s great. Yeah, it’s so interesting. It’s nice that it just sort of fell into place for you. So yeah, if we can go back to you being 17 and getting your diagnosis of ms, at what point did you realise that there was something wrong with your health? How did that sort of start for you? Yeah, it really only started when I was actually 13.

Which when I look back I’m like, that’s so young. I was, I didn’t really question what was happening because there was so much happening with my body. You know, going through puberty I had growth spurt pains, and, you know, my menstrual cycle was starting. [00:04:00] So there was a lot of changes happening anyway, and one of the first things I noticed was my left arm was weaker than my right arm.

And that was the first ever symptom. And I was, I was 13 and then I kind of just brushed under the carpet because I got, I recovered pretty quickly after that. It was the maybe three week kind of symptom in total. And once it went away, you just continue life as a 13 year old, you know, homework and school friends and playing outside.

And then when I was 17, I had two symptoms. One, the first one was double vision, which only really lasted about 10 days. And that’s when I started to become a little bit more aware of health. And I was a bit like, this isn’t normal. So we went to the opticians and, you know, he actually referred me straight away to A&E

he was like, there’s something in in your brain that’s not, you know, Functioning well. So that kind of rang alarm bells and then, Six months after that I had like my worst ever relapse, which was right-sided weakness, so arm, leg, and torso. And that was really what led to the diagnosis. So it was it was just three [00:05:00] kind of isolated symptoms that kind of made me realise this is a pattern and it’s not, I need answers.

And I got diagnosed soon after that, so about two months after that. So it was a month before my 18th birthday. So it was quite a quick well, quite a quick diagnosis for you once you had those second sort of episodes at sort of 17, but it’d been a longer journey for you from from 13 with sort of the first first sort of episode and.

You know, I, I talk regularly to patients about how they feel upon receiving the diagnosis. And in, you know, in my own experience and in talking to patients, I find that people tend to fall into sort of one of one or two categories. Many feel a kind of a loss, a loss of the life that they could have had that the sort of, they’re grieving for that old life.

Others like myself, it’s a relief because the diagnosis has been a long journey. I had an, I had a very long journey to diagnosis. So I was about 15 years getting diagnosed which is a very long time. So for me it was that sort of relief, weight lifted, finally know what’s wrong.[00:06:00] But for those out there who are on the road, maybe on the road being diagnosed or who have recently been diagnosed, can you reflect like on that time now of getting the diagnosis and kind of how that made you feel?

Yeah, I, I remember the initial reaction was denial. If I’m being honest, I, yeah, I did not want to have that diagnosis. And I think that’s the, you know, the story with a lot of people. I questioned a lot, you know, I was active, you know, being in sport and doing everything in school, and I just thought, what did I do wrong?

Like, why, why me? So, it was a very, kind of confusing, I was very angry, very upset. So it was kind of like in between, I, I didn’t feel any sort of relief and I’ve heard a lot of those kind of stories and I did not resonate with any of them. Mm-hmm. And I just thought, how can you be relieved? This is not, this is not, not a great thing to have.

And then it took me a while, I, I’d say maybe about three years to really come into sort of acceptance of the diagnosis. Because I thought maybe, maybe it’s something else. Maybe they got it wrong and, you know, you’re questioning all these things. [00:07:00] But now looking back, I really wish that I found that acceptance sooner.

I , I was just fighting a lot of emotions and now I’m in a really great place where I’m kind of almost I wouldn’t say proud, but you know, it, it’s given me a sense of purpose to pursue sport to even harder levels. You know, it’s kind of given me a bit more appreciation of my body and appreciation of what I do, and I’d never take anything for granted.

So, in a, in a strange way, it took a long time, but in a strange way, it’s given me yeah, sort of gratitude and a really, a strong sense of purpose to really go for what I want in life. Because we just don’t know how long we can be active for. And yeah, it’s it’s definitely a journey and everyone takes it differently.

And the one piece of advice that I would give to someone who is maybe on the journey to diagnosis is to not compare yourself to somebody else. Because I was searching for that. sense of relief and I never found it and I thought, what’s wrong with me? And that added to that fighting feeling. So that would be my one piece of advice is to just take your own journey as it is and let those emotions come and, and deal [00:08:00] with them in the best way that you can as a person.

Yeah, I think that’s really important. That’s why I wanted to ask you that question because when I talk about it, I talk about the fact that for me it was a relief, but I know that for a lot of people mm-hmm. They go through the experience that you sort of went through with it. And that can be the journey running up to it.

Like I said, mine was, you know, mine was at 15 years, so it was finally getting a label on it sort of was, almost was that sort of relief for me. But it is a different journey for everybody and that’s why it’s interesting to have these conversations and let people see different sides of it and know that it’s okay to deal with it in any way that, you know, works for them and how it’s, how it, you know, however it fits.

Yeah. So how did the diagnosis impact that journey? Because by that point you were, you were sort of, You know, I guess on the path to being a GB athlete and how did it impact that? Did you have a question at the, you know, when you got that diagnosis, did you question whether or not that would now be possible for you?

You know, were there times when you thought maybe it wouldn’t? And how did you, how did you deal with that? Yeah, I mean, it’s such a long time ago, but [00:09:00] I remember, so I lost complete function of the right side of my body. So I really had to learn to walk again , to run again and then to sprint again.

So it was a long journey kind of coming back, but I really yeah, I only really did it for the love of sport and for the love of movement. It’s always been my thing to move. So I never put pressure on myself to become elite. And it was never, so by then when I got diagnosed, I was 17, turning 18, and I really only went pro when I was 19, so it wasn’t something that was still in the sight.

So it was just for me to kind of retrain my body to move again. And I think that was the best way to look at it. And it was my first coach who got me into the 400. Cause I used to do distance back then. He was really patient with me and I remember turning around to him and I said So my, my sis, my twin sister who’s basically at carbon copy with me was, was going to the World Junior Championships, which obviously is the highest level of sport at that age.

And I just remember saying to my coach, that’s, it’s so not fair. Like I would’ve been there. And he goes, he turns around to me, he goes, okay, well let’s just have another goal for this year. [00:10:00] And we, we set a number. I think the, the goal was to run sub 57 in the 400. And we just chipped away at those goals.

And then when I did that, I was like, wow, look what I set my mind to. And it put me kind of top 50 in the country back then. And then I turned around to my coach and I said, I wanna try and make the GB team next year. And I was 18 for the four by four. And he turns around to me, he goes, okay. Let’s do it.

And so it was just another goal to have, and I ended up not only making the four by four, but also making the individual 400 at the European Junior Championships, which was for me, one of the biggest achievements of my career. Just because I set my mind to it. Yes. And I never really put yeah, any pressure on myself to, you know, be the best in the world or, you know, to be the best in Europe, or I wanna be the best in the country.

But I never put pressure on myself to kind of, you know, Be the best. I just wanna be better than I was last year or last month, or I think that’s something like that way of looking at it. Yeah, yeah. Really, I, I’m a big fan of the sport. Like I just came back from race just this, just this morning.[00:11:00] And I was the first event on the track, so I did my race and as soon as I’ve cooled down, I’m in the stands watching because I’m such a big fan of the sport still with being in it as an athlete, I’m still such a big fan.

So I really just do it for the love of, of sport because it really is my greatest love. Do you think that that sport mindset, you know, you sort of said you were talking with your coach, working with him. Do you think that helped you through the diagnosis as well? In a way? For sure. Yeah, because I think it gave me a sort of outlet to yeah, to kind of go, when you’re on the track, it’s just track, you know, you forget about everything else.

You forget about your to-do list and back then my exams and things like that. So, and I really just, for me, it was the best way to get my body moving again because it was just kind of the, the training that you do in track and field is so specific, you’re really targeting those like motor neurons and you know, the, the tiny little specific movements.

So for me, I could feel every day I was getting better movement back in my body. And I, I believe so strongly that. Running and all the [00:12:00] little conditioning drills that you do for running was getting those motor skills back to my body. And yeah, that was my belief system and, and to this day, my belief is that track and field has saved me.

So. There was no question that I wasn’t gonna return back to track and field in whatever capacity. I just wanted to, to go back to moving. Yeah. And you can, and you can retrain and retrain the body and retrain the brain and that’s, you know, it’s really important to, to look at it that way. So your career, you went through I think nine years of that kind of, you know, top level sport and all whilst doing that, you kept this MS diagnosis private, so what made you decide eventually to speak out about the diagnosis or what made you decide not to speak out about it earlier? Yeah, no, that’s a good question. I think at the start of my professional career, I turned pro at 19, which was really fortunate actually, and not a lot of people can say that.

So I was really, really fortunate. And I remember, so when I was 19, I still hadn’t accepted the [00:13:00] diagnosis, so I couldn’t speak about it. Yeah. And I, it was only me, my sister, my close friend, and my mom that knew about it and my coach because he saw the, you know, the whole relapse. And so because they knew, I was like, that’s enough people.

I can’t, I couldn’t even say the two letters. I think I remember looking at like the logo for m and s and being like, I can’t look at that. Like, yeah, I was so not accepting. It was so funny. Not accepting of it, so I couldn’t speak about it. And, and then when I turned 21, I had then made my first senior team.

And actually I had a relapse when I made that senior team, which was really funny. So I was like, oh, I don’t know if I’m ready to speak about it. So I was kind of accepting it, but I wasn’t quite ready to, to speak about it. And I always thought maybe I’ll make the Olympic team and then retire and then say, oh, by the way, this whole time I’ve had MS.

That was always like my, I, I was always going to tell my story, but I wanted to do something special first and then kind of tell the story and then when I went to the World Championships [00:14:00] last year literally the worst timing. It couldn’t be any, any worse. I had a relapse two days before my heats of the world championships.

And I always believe in your, your gut feeling. So my gut feeling told me to go and do a yoga teacher qualification. It was one of the best decisions I’ve made and my gut, the same gut feeling was telling me, now’s the time for you to say, you know, what was going on. Because when I was looking at the previews for the world Championships you know, you, you had your stars, your Dina, Asher Smith and Ke Hodgkinson are gonna medal, but right down at the bottom of the previews and Great Britain’s Lina Nielsen is also a potential for the final. And so when I ran the heat, I came last in my heat and it just wasn’t a reflection of how good my season was before that.

And I kind of thought, okay, this could explain why I ran slow and could also explain why I will run slow in the upcoming championships, because we still had the Commonwealth Games and the European Championships all in one year. And I just knew I wasn’t gonna come back for those. So it was kind of an explanation as to why, you know, my world championships didn’t go [00:15:00] so well and I also just felt like it was the right time.

And my gut feeling was just saying, look, just just tell your story and looking back at it at it. Now, the first few days I regreted it. I regret telling my story because. Yeah, it, it just, I didn’t expect it to, to blow up as it did. I really thought people would go, oh, okay, all right. So that’s why she ran three seconds slower.

But then, you know, it, it was, it went almost worldwide. I had Brazil media reaching out. Finland, Norway, Turkey, Saudi Arabia. It was, it was crazy. Like, I just thought, I did not expect so many people to be so invested, and I, I really didn’t like it. And after about a couple weeks is when people who also had MS or have, you know, family members that have MS side reaching out.

And I realized that it had a positive impact and that’s what really made me, yeah, I was really proud of, of that moment after, after receiving all of those messages. And I think that’s, I mean, you know, that’s why I reached out to you to do this because I think that’s, it’s important for people to hear a positive story around some of these [00:16:00] conditions.

And I, you know, I think it’s great that you spoke out and I, I understand that obviously for you, it obviously it did, it did sort of blow up like you say, but I, I do, I do think, you know, long term, I think it’s great that you’ve spoken out and, and brought that attention to it. Because people do have, I was talking to about this to somebody else the other day and we were saying, you know, people do have that image of MS of, you know, being somebody in a wheelchair or, you know, those sort of things.

And actually you could walk past so many people in the street that have got MS and you just wouldn’t, wouldn’t know it. And it’s nice to be able to spread that message about it as opposed to sort of the, all the, the downsides that go with it. Yeah. And I feel like that was also one of the reasons why I maybe didn’t speak about it.

Because I was just so scared that people would be like, well, why aren’t you in a wheelchair? Why aren’t you in the Paralympics? Which some people did say that. But when I did tell my story, I got reached out by reached out to by an Olympic skier, an Olympic gymnast. And these are people that are keeping their, you know, story silent.

And then, Various national level athletes who are on the cusp [00:17:00] of being international who also have MS. And it’s, and, and they were just like so grateful that you know, someone was, was shining a positive light because it’s not always the case that you’re gonna end up in a wheelchair. And you know, like you said, you, you can, you know, walk past someone who looks completely healthy and you just wouldn’t know.

And so I feel like it’s really important for us to kind of shine that light. Yeah. Because yeah, I feel like a lot of, of focus is on, you know, like the, you know, being in a wheelchair and, you know, the, the doom side of it. Yeah. That’s amazing that others within your industry reached out as well that, you know, hadn’t spoken out that’s, that’s really fascinating. So what have you, I know you’ve, you’ve just touched on sort of doing the yoga teacher training and and you do that now on the, on the FIT app, which we’re going to link below in the show notes for people, to, people to have a look and see what you’re doing.

But what have you found helpful in supporting your body with MS? Because I know that you’ve taken a somewhat holistic approach to supporting yourself using your diet, lifestyle, obviously the sport you know, and I, I obviously [00:18:00] help people to do that within clinic, but what have you found has really helped you and benefited you with the MS around those sorts of things?

Yeah, I think I’m really fortunate that I was naturally in sport because obviously with that comes wiser health choices so obviously we take our sleep very seriously. We’re getting almost 10 hours a night, and I think that’s massive. Yeah. So one of the first things I did when I was at the World Championships, we were in Oregon.

Before I touch on that, actually, the second thing that I really take pride is my food choices. You know, I try to lead an anti-inflammatory diet, which I know that you are really passionate about. Yeah, and it’s one of the things, again, so grateful for sport because you naturally have an almost anti-inflammatory diet.

And actually when I had my major relapse, so when I was 17, I was actually telling, telling someone this recently, cause I was reading a book about ancient remedies and Mediterranean diets and stuff. And so when I was 17 they, the doctors were like, you know, you need to take [00:19:00] Antiinflammatories and they were listing all these side effects for these antiinflammatories.

And I was at 17, I don’t even know where I found this wisdom. I was like, no, I’m not gonna do that. And I just said like, no to the doctor. And so they sent me home. I don’t even know where I found the strength to just be like, no. They sent me home and my mom’s Egyptian. So that’s naturally a Mediterranean ish diet.

Yeah. And one of the, the cultures in like Egyptian households is when someone’s sick or when someone’s, you know, family member has passed away or anything that’s, you know, quite sad in a family. Your whole family comes around and they bring food. So we had, you know, all this amazing nutrition, nutrition nutritious food from all my family members.

And I just remember just having just a feast of, basically when I look back at it, Mediterranean anti-inflammatory foods. And I healed pretty quickly after that, and I don’t think that’s a coincidence. So going back to my point when I was in Oregon, the west coast of America, I really believe that one of the reasons I [00:20:00] relapsed was the food that was there.

Ah interesting.. Yeah. Obviously we know that the US lifestyle isn’t that healthy. Yeah. And the whole world was in one building, basically the whole of the world championships or the country’s teams were in one building, so they were batch producing these meals. I don’t know what they put in those in those dishes. Yeah. I wasn’t, I wasn’t aware for the first time in my life I wasn’t aware what I was really putting into my body. Yeah. And so when I looked at what changed in my lifestyle, that was one of the major things that changed. It was the food choices that, you know, I was eating at those world championships.

So when I had my relapse, I remember just begging the Great Britain team to send me home. I was like, please send me home. And I’m so grateful because I know it must have cost them an arm and a leg to book a last minute flight for me. But I was just like, send me home. Please send me home. I need to heal.

And as soon as I got home bless him, my boyfriend was cooking meals for me. Cause I couldn’t really hold a wooden spoon at that point. The relapse had affected, you know, right-sided strength. And so we were coming up with meal plans, anti-inflammatory foods for [00:21:00] me to heal as soon as I could. Because I had the Commonwealth Games in about two weeks time after the world Championships.

And I started healing. But, I lost a lot of training after that. So those are the two things that I really, really take pride in is movement. So for me it’s sprinting and yoga and really just making wise food choices. Yeah, I think it’s so important. And you know, you read, you know, I’ve had people come to me that have sort of said, oh, you know, doctors have sort of said, oh, you know, diet doesn’t have an impact in all of this.

And, but the more and more people I speak to who see the impact you actually, like, you have, you know, actually sort of seen that impact themselves and they realise that actually it is connected and it, and it’s not, it’s not necessarily a choice for people of, you know, you have to have, it has to just be sort of a natural approach or it has to just be a medication approach.

You know it, for some people it’s both. For some people it’s one or the other. And it’s whatever, you know, it’s whatever works for for people, but a hundred percent diet has an impact on these sorts of conditions and it’s really interesting there that you touched on sort of knowing what you were putting in your body, because that’s always how [00:22:00] I talk about it with people is sort of saying, you know, you really want to because here, obviously it’s buying sort of packaged foods and packaged meals that’s become so common in supermarkets and things like that. But you don’t know when you buy those. You don’t know actually what you’re putting in your body. And actually, if you go and just buy the ingredients, you’re picking up fresh foods and.

You know, you can make that meal and you know exactly what’s going into your food and exactly what you’re putting into your body and what nutrients you’re giving it and healing. And that’s really important. And also the sleep that you touched on you know, sleep is I know for me as well is, is a really big one.

And making sure, yeah, you get, you get enough of that in there. You, you know, you obviously are living relatively well with with MS and it’s really inspiring to see, you know, people like you who are competing top level and you’re not letting your MS hold you back in any way. Have you found, have you found mindset has played a role in that?

For sure. Yeah. I mean, that’s also one of my beliefs. You have to be positive because that’s also. One of the [00:23:00] things I’ve read about recently is how emotions can affect your body. It’s obviously stress. We know stress can raise your cortisol levels and that can affect your health. Yeah. And then I was reading about, you know, when you’re scared, like when, when a child is scared, their body reacts and they wet the bed.

Yeah. It’s a natural reaction for your body to react to emotions. Your emotions affect your health. And so I fully believe that you need to be positive. And that’s the mindset that I carry. Like you’ll always see me smiling like even when, you know. Things go wrong. I’m still trying to find the silver linings and the positives and things and I really feel like you have to believe that you can be healthy and, and I sound like one really crazy yoga teacher who’s a hippie and lives in the forest, but I really fully believe that you have to, you have to be positive and, and it’s hard.

It is really, really hard. And after the world Championships, I’ve found it really hard to be positive. But you, one of the greatest advice that I’ve received pieces of advice that I’ve received is from the current world record holder in the four hurdles. I raced her a [00:24:00] couple years back and I just had the worst race.

And she came up to me, she’s like, Hey, look, you can be sad, but not for too long. You really have to just be positive and, and yeah, I, I fully believe that. You know, belief is, is one of the things that, that you need to carry, especially with, with something like MS that not to be defeated, not to just let it, you know, consume you, but to really, yeah.

See how you can spin it, use your diagnosis for good. So obviously you are, you are doing great things with your diagnosis and I’m trying to do great things as well, and I think that can have a really positive impact on your health. So I think the mindset that I had from sport is to bounce back, you know, every, every sports person has a, has, has a setback, whether it be injury, illness and so it’s really taught me to kind of, you know, spin it around and, and just look forward.

And I’m, I’m really grateful for sport for that because it, it does kind of build your what’s the word I’m looking for? Resilience. Yeah. I think and I think, you know, I think like you just said, that, that, Sport has given you that [00:25:00] and speaking out and having people, other patients reaching out to you has given you that sort of, that that sense of the good that you are doing by speaking out.

And I know I get that from working in clinic with people and helping other people and sort of spreading the things that help me and being able to help others with that. And I think doing something positive with it. Like you were saying, with the sport, speaking out with me with clinic, I think those positive things and putting a positive spin on it really makes a huge difference to how you deal with, with your own diagnosis as well.

So you are, you know, you are helping others, but it’s helping you too. Which I think, you know, if other people can, can do that, it’s, it does really help. So, any, yeah, any final words of reassurance or optimism for the listeners out there who might be struggling to get a diagnosis or coming to terms with diagnosis?

Because, you know, we’ve, we’ve already said we, we get so much of that negative side of the story. We don’t get much positive outlook. But what would be your kind [00:26:00] of, what would you like to leave people with as a sort of message for being able to live well with, with MS. One, one thing that I’ve learned in the past year is to definitely do your own research because there’s not a lot of information out there for people with MS that can potentially help you.

So I would definitely do your own research about holistic health, functional medicine, I’ve learned so much in the past year that I really wish I knew at 18. Yeah. And it was just because I, I didn’t know that you could do your own research and that you could, you know, dig your own holes and find all these nuggets of information.

Look for the success stories because a lot of the time media pushes the not so successful stories. Yeah. So look actively for the success stories and actively do your own research about health, and I think you’ll have all the tools you need to, to navigate life going forward. Lina, I love that. Thank you so much for joining me today and sharing your story.

I just, I know how much of an impact this will have for people, you know, with MS. [00:27:00] People that I work with, people that are just finding the story, people who follow you. And I love your positivity and honesty around this conversation. So thank you so much for doing this. I really appreciate it. No, thank you so much.

Honestly, this has been a joy. I’m, I’m just really, really happy to talk about Yeah, MS and, and really spread that positivity. I hope you enjoyed this episode of The Good Health Podcast. Do share the episode with anyone who you think it may benefit or who may enjoy it and help me spread the word by rating the episode or leaving a review.

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